Tuesday, February 05, 2008

Olivia's Appointment

Olivia's doctor appt yesterday was nothing. It was pretty much just her regular 3 month check up. They did her normal blood draw and will test that not only for everything they usually check, but will also check the med levels of her new seizure med and will check for sensitivity toward a new medicine. They want to switch the medicine they placed her on over a year ago. This is the one that was causing her low white blood count. It also has seizures as a possible side effect.

Does that mean that that is what her seizures are from? Not necessarily. With her history and everything there are just too many risk factors to say for certain what could have caused them, but it IS a possibility. The new medicine has an extreme sensitivity in about 1-2% of the population. They used to just have to start someone on the meds and wait and see, but they have JUST developed a way to check the blood for something that determines this sensitivity, which is great. So, she will be starting on the new med once the test determines she's not one of the 1-2%. The thing that really stinks is that the new med is a liquid! :( We were done with those and on all pills which has been so freeing! Such a bummer!

I also talked with them about a report I just read Friday that came out on Thursday. It listed 11 antiepileptic meds in a study that found a link between those and a higher increase in depression and suicidal thoughts. Of course Olivia's med is one of those studied. It sounded in the report like even the ones not tested would most likely have the same outcome, however. The report actually made sense to me in a way. The past few weeks while she has been on her new med she has shown a preoccupation with death and dying. Not in the way a teen or adult would, but it's definately there. She came down crying and crying one night because she had had a dream where she grew up and I died right away. She has also been overheard playing with Braeden and talking of death in the play. In the car the other day they were playing and she said that "They have four kids, but one of them died so they only have 3 now." We have talked about death in an occasional talk previously, but this is way beyond. Of course this is extremely concerning and I was able to have her leave the room with our social worker at the hospital for a while as I discussed this with her nurse practitioner. She paged the NP of neurology, but no response. She is going to talk about it with her and get back to me. Two years on a med that is already showing this is scary.

2 comments:

Julie said...

I hope things go well with the meds- I would think that a child with HIV would talk about death some ??? but that seems like a lot in a short time. I hope it is just coinsciedence (sp?) ha- anyway- I pray that she doesn't get that side effect- :( Hang in - your plate is full!

Me said...

I know what you're saying, but she doesn't understand yet that HIV leads to AIDS and potentially death. She's only 6, so she knows she has HIV and that it affects her blood and that it's monitored through medicine, but doesn't understand much more than that yet. She asked the other day when her HIV would go away...

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About Me

I am a single mom to four amazing kids; each of whom just happen to have been adopted. The first three were adopted through foster care, and we just completed an international adoption from Haiti. Our family has grown through adoption and I am all the more blessed to know each of my children. I worship a mighty God, teach Special Ed, love bargains, and am inspired by Pinterest... come along with us for the ride!


Olivia - 14

Olivia - 14

Braeden - 11

Braeden - 11

Liam - 9

Liam - 9

Macy - 5

Macy - 5

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What you should know about HIV

-HIV can NOT be spread through casual/household contact. HIV is not spread through hugging, kissing, shaking hands, sharing toys, sneezing, coughing, sharing food, sharing drinks, bathing, swimming or any other casual way. It has been proven that HIV and AIDS can only be spread through sexual contact, birth, breastfeeding and blood to blood contact (such as sharing needles). - HIV is now considered a chronic but manageable disease. With treatment, people who are HIV+ can live indefinitely without developing AIDS and can live long and full lives. - People who are HIV+ deserve to be treated with love, respect, support and acceptance as all people do. Additional information on transmission of HIV can be found on the Center for Disease Control website: http://www.cdc.gov/hiv/resources

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Orphan Crisis

• 147 million orphans in the world
• 50 million orphans in Africa 
• Every 14 seconds a child is orphaned by AIDS
• 16,000,000 have been orphaned by AIDS
• Every week, AIDS claims as many lives as American fatalities in the Vietnam War
• 854 million people do not have enough to eat
• Malnutrition is associated with the deaths of 5 million children under the age of five
• Every 2 seconds an orphan dies from malnutrition


Hence the title of my blog

Little Did I Know

Little did I know that the road would be so rocky
Little did I know that the trip would take so long
Little did I know that my heart could hurt so much
Little did I know that God is never wrong

Little did I know that love could be so powerful
Little did I know that a dream so far could go
Little did I know that God would place the right ones
Little did I know that my heart, so large, could grow

Little did I know that a dream has it’s own timing
Little did I know that this day would finally come
Little did I know that four souls would be sent to guide me
Little did I know that they would choose to call me mom

But God knew all along and He had a plan to follow
God knew all along that my dream would soon come true
God knew all along that we five should be together
God knew all along that I’d share it all with you