Saturday, October 09, 2010

Olivia Update

Sorry for the delay in updating on Olivia's neuro appt today. Following the appt we picked up my parents from the airport, drove back, and have been entertaining them while working on Braeden's struggle with this huge transition he's been anticipating for so long in their arrival.

Olivia's neurologist spent quite a bit of time with us today, BUT he is perplexed and has no idea where her ten days of, well, basically paralysis came from or if it will or could happen again. He does not think it many things however, which I guess is good. He doesn't think it's seizure related, even though he did up her meds to satisfy the other neurologist as well as just to "be safe". But due to the fact that her paralysis, for lack of a better term, happened in BOTH legs, it is most likely not seizure related as that would affect one leg since one side of the brain controls one side of the body and vice versa. He also does not think it's MS, or a number of other things, because there would be some residual affects and it would have lasted for a few days, it would not "come and go" as her paralysis did. He doesn't think it's nerve or spine related because there would have been pain associated with it where she had none.

The only thing that we both THINK it could POSSIBLY have been caused by... her HAIR! Two weeks prior to this period, Olivia had a weave put in. It's an inexpensive one which I did myself, purchased at a local hair supply store. All week when I was carrying her there was a strong, almost noxious, odor or fumes coming from her head. I thought it odd, but I don't go around smelling her hair so thought maybe that's what it smelled like. :) BUT, things started to fall into place for me and I did a little research. Many hairs like this are made with formaldehyde. And other highly toxic chemicals. Perhaps one batch of her hair had more than it's share??? Each night she slept on and breathed in this hair. Each morning, as we were out the door and in the fresh air, she became "better" and was "fine" during the day. Then Sunday, she took her first shower of the week as she hadn't because of her legs prior. That night she had only one hour of one leg being "numb." And starting Monday morning... fine... She's taken one or two showers a day since (I haven't had the hours it will take to remove and then "do" her hair again in time for a wedding this Saturday - but it will come out asap after!). Our neuro doctor said that he has seen similar reactions in people where a formula using high metal content in a lice remover was used on their hair. Very interesting. Too bad there's not a way to prove or disprove this theory! Especially as I keep waiting for the other shoe to drop and it to start all over again! :(

So, what are we doing??? Well, he is ordering a thyroid test the next time we are doing blood work, just to be "sure." We are keeping with the higher seizure med dosage. And we are watching her. That's it. And it scares me. The week was hard. Very hard and scary for both of us. So we keep praying and trusting that God, not myself, not the doctors, is in control and will carry us through, no matter what.

Thank you again, all of you, for your support, your prayers, your concern, your love. We appreciate it more than you can know.


Ashley said...

Glad to hear it isn't her spine or nerves, MS, and such, but sorry you still don't have an exact answer. I'll keep her in my prayers asking that it won't begin again.

Yikes! The hair!!! That really stinks. I hope she doesn't have any more episodes. I think this just reaffirmed my desire to hold on to my baby girl's little natural afro puffs for awhile longer.

Love and prayers to all of you!

Jess said...

It's Jess from the Congo adoption group. I have been watching your blog for an update on Olivia, and I am happy to hear that they can't find anything in the tests. Praying that it is the hair, and that this will be the end of it.

Leslie said...

I'm praying for you guys.

maureen said...

OMG! I never would have put that together. We have Katy's hair extensions braided in by an African lady at a salon. It is super expensive, but lasts 3-4 months. I was just thinking, after seeing how cute Olivia's was, about trying to do it myself like you did. Maybe I will have to rethink that option.

Praying for continued good health and recovery for Olivia. Have fun with your parents!


Post a Comment

Let's Connect!

Search This Blog


About Me

I am a single mom to four amazing kids; each of whom just happen to have been adopted. The first three were adopted through foster care, and we just completed an international adoption from Haiti. Our family has grown through adoption and I am all the more blessed to know each of my children. I worship a mighty God, teach Special Ed, love bargains, and am inspired by Pinterest... come along with us for the ride!

Olivia - 14

Olivia - 14

Braeden - 11

Braeden - 11

Liam - 9

Liam - 9

Macy - 5

Macy - 5

Check out my Teachers Pay Teachers store!

Blog Archive

What you should know about HIV

-HIV can NOT be spread through casual/household contact. HIV is not spread through hugging, kissing, shaking hands, sharing toys, sneezing, coughing, sharing food, sharing drinks, bathing, swimming or any other casual way. It has been proven that HIV and AIDS can only be spread through sexual contact, birth, breastfeeding and blood to blood contact (such as sharing needles). - HIV is now considered a chronic but manageable disease. With treatment, people who are HIV+ can live indefinitely without developing AIDS and can live long and full lives. - People who are HIV+ deserve to be treated with love, respect, support and acceptance as all people do. Additional information on transmission of HIV can be found on the Center for Disease Control website:

Other Awesome Blogs

Orphan Crisis

• 147 million orphans in the world
• 50 million orphans in Africa 
• Every 14 seconds a child is orphaned by AIDS
• 16,000,000 have been orphaned by AIDS
• Every week, AIDS claims as many lives as American fatalities in the Vietnam War
• 854 million people do not have enough to eat
• Malnutrition is associated with the deaths of 5 million children under the age of five
• Every 2 seconds an orphan dies from malnutrition

Hence the title of my blog

Little Did I Know

Little did I know that the road would be so rocky
Little did I know that the trip would take so long
Little did I know that my heart could hurt so much
Little did I know that God is never wrong

Little did I know that love could be so powerful
Little did I know that a dream so far could go
Little did I know that God would place the right ones
Little did I know that my heart, so large, could grow

Little did I know that a dream has it’s own timing
Little did I know that this day would finally come
Little did I know that four souls would be sent to guide me
Little did I know that they would choose to call me mom

But God knew all along and He had a plan to follow
God knew all along that my dream would soon come true
God knew all along that we five should be together
God knew all along that I’d share it all with you