Saturday, March 22, 2008

Easter Preparations

We are Easter ready... Outfits are set out and ready for church and the kids' empty baskets line the dining table... Just waiting for the Easter Bunny to make an appearance and fill them up! We read a great book that my parents sent for Easter titled What is Easter? It really helped explain it in kid friendly terms.
The kids are excited about Easter. Well, Braeden and Olivia are excited, Girlie keeps asking, "We get candy???" and Liam hasn't a clue, but fun it will still be. It flurried today, but no snow like they received north of us. I'm glad the boys have pants and long sleeves and that I got the girls cardigans for their dresses! :)
Thursday was Liam and Olivia's appointment at the neurology dept at University of Chicago. It went really well. I LOVE their neurologist, he was/is great! His focus was all on Olivia, questioning, finding out what happened when, etc. After her meds were increased the beginning of the month Olivia hasn't had any other issues with her legs. The neurologist said that we are still on the low end of dosage ability for her, so there is plenty of room to increase still if we need to. He said that as far as activities, they want kids to retain as "normal" a life as possible: no restrictions as far as sports. BUT, she is not to take baths, only showers, she is never to lock the door of a room with no windows or a way in, especially a bathroom, and she needs to have someone by her if she is swimming. Which really means no lessons, unless they are one on one, so I'm glad she has already had lessons and progressed as far as she has.
The neurologist then switched to Liam and completely focused on him. I asked if it was possible that it was an environmental issue since both began seizures at a similar time, but he doesn't think so at all. He is concerned that Liam's seizure over the summer did not correspond with a fever although the last one did. He said that many cases of nighttime seizures in young ones typically correspond to a loss in speech development, but from what I shared with him it didn't sound as though that has occured. He gave me specifics to watch for if there is a "next time." He wants to see the results of the testing that was done last summer and the time recently he was in ER so I'm having those faxed there on Tuesday after I look them over.
He wants to see both of them this summer, in July for a clinic visit and for testing. If Liam has another episode between now and then he wants him to get testing done right away, otherwise we can wait until July. All in all is was a great visit! :)


Julie said...

What a blessing- I am so glad to hear that both news is good. Yippee!!!

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About Me

I am a single mom to four amazing kids; each of whom just happen to have been adopted. The first three were adopted through foster care, and we just completed an international adoption from Haiti. Our family has grown through adoption and I am all the more blessed to know each of my children. I worship a mighty God, teach Special Ed, love bargains, and am inspired by Pinterest... come along with us for the ride!

Olivia - 14

Olivia - 14

Braeden - 11

Braeden - 11

Liam - 9

Liam - 9

Macy - 5

Macy - 5

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What you should know about HIV

-HIV can NOT be spread through casual/household contact. HIV is not spread through hugging, kissing, shaking hands, sharing toys, sneezing, coughing, sharing food, sharing drinks, bathing, swimming or any other casual way. It has been proven that HIV and AIDS can only be spread through sexual contact, birth, breastfeeding and blood to blood contact (such as sharing needles). - HIV is now considered a chronic but manageable disease. With treatment, people who are HIV+ can live indefinitely without developing AIDS and can live long and full lives. - People who are HIV+ deserve to be treated with love, respect, support and acceptance as all people do. Additional information on transmission of HIV can be found on the Center for Disease Control website:

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Orphan Crisis

• 147 million orphans in the world
• 50 million orphans in Africa 
• Every 14 seconds a child is orphaned by AIDS
• 16,000,000 have been orphaned by AIDS
• Every week, AIDS claims as many lives as American fatalities in the Vietnam War
• 854 million people do not have enough to eat
• Malnutrition is associated with the deaths of 5 million children under the age of five
• Every 2 seconds an orphan dies from malnutrition

Hence the title of my blog

Little Did I Know

Little did I know that the road would be so rocky
Little did I know that the trip would take so long
Little did I know that my heart could hurt so much
Little did I know that God is never wrong

Little did I know that love could be so powerful
Little did I know that a dream so far could go
Little did I know that God would place the right ones
Little did I know that my heart, so large, could grow

Little did I know that a dream has it’s own timing
Little did I know that this day would finally come
Little did I know that four souls would be sent to guide me
Little did I know that they would choose to call me mom

But God knew all along and He had a plan to follow
God knew all along that my dream would soon come true
God knew all along that we five should be together
God knew all along that I’d share it all with you