Monday, July 27, 2015
When Your Child is Ill - Part Three
You can read part one HERE and part two HERE if you haven't already.
The night of July 7 I finally was able to go home once we knew the "plan". Braeden had left earlier in the day to go back to the friends he had stayed with before. Liam and Macy were home with my friend who had been there since 1am. Just amazing. I can't thank her enough.
But Macy was stressed. She was quite upset. I think because I came home without Olivia and she was expecting us both, that when I came in alone she was not happy. She didn't want me to hold her and was mad. She was running a slight temp. I drove Liam to his friend's to stay again and Macy and I came home to sleep. I barely slept at all. I vacillated between chills and sweats, and thought I was basically dying. I tried calling different friends to get my mind off things, but nothing seemed to help. I felt like I was falling apart.
The next morning I still was not feeling good at all. Macy seemed a bit better but was still not real happy. We got ready and left early to hopefully be in Olivia's room before the doctors began coming around. We found out they hadn't done the EEG the night before as they hoped but that the tests would all be done today. One of the child life specialists (AMAZING people - wonderful job!) came to see if Olivia (and us) wanted to come down to see some therapy dogs and also meet some of the White Sox Umps and the mascot Southpaw who were coming to visit.
Macy LOVED the play room. However, mom didn't really think through the fact that she had never seen a character before. This was the look she gave when he walked in...
She quickly warmed up to the umps though, they were SO incredibly nice! And as long as Southpaw was nowhere near her she was fine.
The folks from the White Sox gave out Build a Bears and clothes to the kids so Olivia and Macy each got one. Macy was ECSTATIC over the Spiderman outfit! So funny!
Following that and the therapy dogs, Olivia was taken right to her MRI and then lumbar puncture. I was still not feeling well and had decided that I would go home a while and see if I could rest some. I couldn't but Macy did. I was feeling so bad I thought I would probably stay home. Olivia had messaged me saying she did the tests and was feeling much better. My friend who had watched the kids yesterday and her husband went up to visit and keep Olivia company a while. She texted me at how much BETTER Olivia was doing and that she looked so good compared to how she had been. I felt so much better hearing those comforting words.
The next morning Macy and I went back and saw how great Olivia was. Even better than she had been the first time we had been discharged. Today we also heard about the results of her tests, and the TWO conditions that were present all due to her vaccine. We were going to be discharged that day, in a much better place than before, but with information that would mean a new normal and figuring out how to manage our (her) day to day.
The night of July 7 I finally was able to go home once we knew the "plan". Braeden had left earlier in the day to go back to the friends he had stayed with before. Liam and Macy were home with my friend who had been there since 1am. Just amazing. I can't thank her enough.
But Macy was stressed. She was quite upset. I think because I came home without Olivia and she was expecting us both, that when I came in alone she was not happy. She didn't want me to hold her and was mad. She was running a slight temp. I drove Liam to his friend's to stay again and Macy and I came home to sleep. I barely slept at all. I vacillated between chills and sweats, and thought I was basically dying. I tried calling different friends to get my mind off things, but nothing seemed to help. I felt like I was falling apart.
The next morning I still was not feeling good at all. Macy seemed a bit better but was still not real happy. We got ready and left early to hopefully be in Olivia's room before the doctors began coming around. We found out they hadn't done the EEG the night before as they hoped but that the tests would all be done today. One of the child life specialists (AMAZING people - wonderful job!) came to see if Olivia (and us) wanted to come down to see some therapy dogs and also meet some of the White Sox Umps and the mascot Southpaw who were coming to visit.
Macy LOVED the play room. However, mom didn't really think through the fact that she had never seen a character before. This was the look she gave when he walked in...
She quickly warmed up to the umps though, they were SO incredibly nice! And as long as Southpaw was nowhere near her she was fine.
The folks from the White Sox gave out Build a Bears and clothes to the kids so Olivia and Macy each got one. Macy was ECSTATIC over the Spiderman outfit! So funny!
Following that and the therapy dogs, Olivia was taken right to her MRI and then lumbar puncture. I was still not feeling well and had decided that I would go home a while and see if I could rest some. I couldn't but Macy did. I was feeling so bad I thought I would probably stay home. Olivia had messaged me saying she did the tests and was feeling much better. My friend who had watched the kids yesterday and her husband went up to visit and keep Olivia company a while. She texted me at how much BETTER Olivia was doing and that she looked so good compared to how she had been. I felt so much better hearing those comforting words.
The next morning Macy and I went back and saw how great Olivia was. Even better than she had been the first time we had been discharged. Today we also heard about the results of her tests, and the TWO conditions that were present all due to her vaccine. We were going to be discharged that day, in a much better place than before, but with information that would mean a new normal and figuring out how to manage our (her) day to day.
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Olivia - 14
Braeden - 11
Liam - 9
Macy - 5
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