Monday, July 27, 2015

When Your Child is Ill - Part Three

You can read part one HERE and part two HERE if you haven't already.

The night of July 7 I finally was able to go home once we knew the "plan".  Braeden had left earlier in the day to go back to the friends he had stayed with before.  Liam and Macy were home with my friend who had been there since 1am.  Just amazing.  I can't thank her enough.

But Macy was stressed.  She was quite upset.  I think because I came home without Olivia and she was expecting us both, that when I came in alone she was not happy.  She didn't want me to hold her and was mad.  She was running a slight temp.  I drove Liam to his friend's to stay again and Macy and I came home to sleep.  I barely slept at all.  I vacillated between chills and sweats, and thought I was basically dying.  I tried calling different friends to get my mind off things, but nothing seemed to help.  I felt like I was falling apart.

The next morning I still was not feeling good at all.  Macy seemed a bit better but was still not real happy.  We got ready and left early to hopefully be in Olivia's room before the doctors began coming around.  We found out they hadn't done the EEG the night before as they hoped but that the tests would all be done today.  One of the child life specialists (AMAZING people - wonderful job!) came to see if Olivia (and us) wanted to come down to see some therapy dogs and also meet some of the White Sox Umps and the mascot Southpaw who were coming to visit.

Macy LOVED the play room.  However, mom didn't really think through the fact that she had never seen a character before.  This was the look she gave when he walked in...

She quickly warmed up to the umps though, they were SO incredibly nice!  And as long as Southpaw was nowhere near her she was fine.

The folks from the White Sox gave out Build a Bears and clothes to the kids so Olivia and Macy each got one.  Macy was ECSTATIC over the Spiderman outfit!  So funny!

Following that and the therapy dogs, Olivia was taken right to her MRI and then lumbar puncture.  I was still not feeling well and had decided that I would go home a while and see if I could rest some.  I couldn't but Macy did.  I was feeling so bad I thought I would probably stay home.  Olivia had messaged me saying she did the tests and was feeling much better.  My friend who had watched the kids yesterday and her husband went up to visit and keep Olivia company a while.  She texted me at how much BETTER Olivia was doing and that she looked so good compared to how she had been.  I felt so much better hearing those comforting words.

The next morning Macy and I went back and saw how great Olivia was.  Even better than she had been the first time we had been discharged.  Today we also heard about the results of her tests, and the TWO conditions that were present all due to her vaccine.  We were going to be discharged that day, in a much better place than before, but with information that would mean a new normal and figuring out how to manage our (her) day to day.  

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About Me

I am a single mom to four amazing kids; each of whom just happen to have been adopted. The first three were adopted through foster care, and we just completed an international adoption from Haiti. Our family has grown through adoption and I am all the more blessed to know each of my children. I worship a mighty God, teach Special Ed, love bargains, and am inspired by Pinterest... come along with us for the ride!

Olivia - 14

Olivia - 14

Braeden - 11

Braeden - 11

Liam - 9

Liam - 9

Macy - 5

Macy - 5

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What you should know about HIV

-HIV can NOT be spread through casual/household contact. HIV is not spread through hugging, kissing, shaking hands, sharing toys, sneezing, coughing, sharing food, sharing drinks, bathing, swimming or any other casual way. It has been proven that HIV and AIDS can only be spread through sexual contact, birth, breastfeeding and blood to blood contact (such as sharing needles). - HIV is now considered a chronic but manageable disease. With treatment, people who are HIV+ can live indefinitely without developing AIDS and can live long and full lives. - People who are HIV+ deserve to be treated with love, respect, support and acceptance as all people do. Additional information on transmission of HIV can be found on the Center for Disease Control website:

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Orphan Crisis

• 147 million orphans in the world
• 50 million orphans in Africa 
• Every 14 seconds a child is orphaned by AIDS
• 16,000,000 have been orphaned by AIDS
• Every week, AIDS claims as many lives as American fatalities in the Vietnam War
• 854 million people do not have enough to eat
• Malnutrition is associated with the deaths of 5 million children under the age of five
• Every 2 seconds an orphan dies from malnutrition

Hence the title of my blog

Little Did I Know

Little did I know that the road would be so rocky
Little did I know that the trip would take so long
Little did I know that my heart could hurt so much
Little did I know that God is never wrong

Little did I know that love could be so powerful
Little did I know that a dream so far could go
Little did I know that God would place the right ones
Little did I know that my heart, so large, could grow

Little did I know that a dream has it’s own timing
Little did I know that this day would finally come
Little did I know that four souls would be sent to guide me
Little did I know that they would choose to call me mom

But God knew all along and He had a plan to follow
God knew all along that my dream would soon come true
God knew all along that we five should be together
God knew all along that I’d share it all with you