Wednesday, August 03, 2011

A Bright Spot

Monday morning I awoke to Liam having another seizure. A full on shaking, very scary, seizure. We had JUST been to Univ. of Chicago for an EEG and MRI on Friday. 911 was called and he was brought in to our local hospital. He isn't always brought in, but I'm very glad he was this time, because within the hour he had another while we were there. He was given medicine to stop him from having any more, and once the doctors here spoke with his neurology team, it was decided he would need to be admitted to U of C for an overnight EEG to try to get answers.

These are the times in my life right now where I love face*book more than ever. This network of friends, prayer warriors, and family... who can see with the click of a button that something is amiss and prayer is needed. Friends who can reach out over the internet, where cell phones don't always work in hospitals, to offer to take your other kids so you can go to the hospital with your youngest. Friends who can lend support from hundreds of miles away. Friends who can take your dog while you're gone. Within the hours we spent at the hospital here, making decisions and figuring things out, I had friends offering wonderful support. I had someone who knows Braeden well offer to take both he and Olivia for the night. They had a BLAST. I had another family offer to take Percy. He did great. I had MANY who were praying, commenting, supporting. It was so needed.

Liam did great in the hospital. He was quite ornery, but I'm glad we were there. We had a wonderful neuro doctor, who is actually going to be following the kids' care now since ours is leaving at the end of the month. She said all the things we already knew. He has seizure activity. It's always there. Always spiking up and down. And his current meds, which are usually the first choice for his type of seizures, just aren't doing the job. So we are reducing his dose, while still keeping him on those meds, and adding in an additional med now as well.

Our second day there, yesterday, just happened to be the annual day that Umps Care comes through. MLB umpires who have teamed up with Build a Bear, come to the hospital to hand out bears and Southpaw, the White Sox mascot joins them and spends time with the kids. What a TREAT for Liam! He had so much fun!!!

You can read the full article (pretty short actually!) HERE... be sure to check the photo gallery to see pics of Liam... I mean Lima! (They spelled his name wrong!) :)

This is one of those times I'm glad I carry my camera around with me! :)

Southpaw took his hat off to show Liam that he had curly hair on top too, just like Liam! :)

They allowed Liam to choose an animal (He picked a puppy, go figure!) and then an outfit. They had a karate outfit, a White Sox uniform, and a Cubs uniform. Now my dad is a HUGE Cubs fan, but I don't think Liam knows this. And it cracked me up when he chose the Cubs outfit, since Southpaw was right there! Southpaw didn't think it was so funny though, and grabbed the White Sox outfit to give Liam too... so he ended up with both baseball uniforms! :)

Southpaw shared his hat...

And the umps got in for a picture as well...

Umps Care seems like a wonderful organization! They are supposed to have pics from this event up on their page in a few days and I can't wait to see them! :) Thanks Umps Care... you made a little boy who had been through an awful lot... smile a whole bunch!


Kathy C. said...

A free BAB? Cool stuff!!!

Jeanie said...

Sad and wonderful post at the same time. I pray Liam's seizures will subside.

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About Me

I am a single mom to four amazing kids; each of whom just happen to have been adopted. The first three were adopted through foster care, and we just completed an international adoption from Haiti. Our family has grown through adoption and I am all the more blessed to know each of my children. I worship a mighty God, teach Special Ed, love bargains, and am inspired by Pinterest... come along with us for the ride!

Olivia - 14

Olivia - 14

Braeden - 11

Braeden - 11

Liam - 9

Liam - 9

Macy - 5

Macy - 5

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Orphan Crisis

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• Every 14 seconds a child is orphaned by AIDS
• 16,000,000 have been orphaned by AIDS
• Every week, AIDS claims as many lives as American fatalities in the Vietnam War
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• Every 2 seconds an orphan dies from malnutrition

Hence the title of my blog

Little Did I Know

Little did I know that the road would be so rocky
Little did I know that the trip would take so long
Little did I know that my heart could hurt so much
Little did I know that God is never wrong

Little did I know that love could be so powerful
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Little did I know that God would place the right ones
Little did I know that my heart, so large, could grow

Little did I know that a dream has it’s own timing
Little did I know that this day would finally come
Little did I know that four souls would be sent to guide me
Little did I know that they would choose to call me mom

But God knew all along and He had a plan to follow
God knew all along that my dream would soon come true
God knew all along that we five should be together
God knew all along that I’d share it all with you